I'm like YAY! He called me back and even before the holiday and he remembers who we are. I like this new doc. He is Awesome.
Then I remember oh wait, it totally sucks that my child needs this kind of doctor to begin with. Ugh. Plus he has not good news about the latest lab results. The area around my heart starts to hurt. This is not awesome.
But then he's encouraging and offering great suggestions and saying let's get you in sooner than your next appointment and let's get him off that scary med and on something that will work and that's pretty cool and exactly what I was hoping for.
And we hang up and I am back to reality really looking it in the face and I'm so so low. With worry and sadness and frustration. It's almost Thanksgiving and I am so thankful and won't let this cloud that but it is totally clouding up the place right now. I can't fake it or hide that.
Back to Seattle we go again and I'm praying that we get closer to the fix.