January 21, 2009

Just Because I'm Hurting Doesn't Mean I'm Hurt

Seizures aren't funny.

I know most of you heard that Senator Ted Kennedy had a seizure during yesterday's Inauguration Congressional luncheon. I'm just waiting for the jokes to start. But I hope none fall on my ears.

I understand we joke. I'm just going to be the party pooper on this one and say I never have and never will find them funny.

When you see your child have thousands of seizures... each time hoping it's their last and the anger that comes when it's not... you might be a little sensitive. Maybe still a little angry.

I won't lose respect for you if you laugh. I just cringe on the inside of my skin. It's just like a little stab to that part of my heart. Stings for a moment but I get over it.

For now.

Please visit the American Epilepsy Outreach Foundation for more information on the seriousness of seizure disorders.

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44 comments:

  1. Oh gosh. I haven't heard any jokes about that. I hope I don't hear anything either because that really wouldn't be funny. I don't think you're a party pooper at all!

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  2. Do people really joke about that? I certainly can't find anything funny about it...

    (((HUGS)))

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  3. My best friend's son had several seizures a little over a year ago, but has been seizure-free for the last year. Yay! I'm like the others...I haven't ever heard any jokes about that, but I am with you, that is just WRONG.

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  4. No, not funny at all. I have a bloggy friend who is struggling with her son's seizures and it is not a humorous thing AT ALL. Not funny either are the seizures of a 76 year old man no matter what your political affiliation. I'm with you Steph, not laughing.

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  5. Thankfully, I have not heard any jokes so far. I hope I don't. I grew up with a friend that had seizures. It is scary to watch...not funny.

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  6. I'm surprised by the things people find funny. Nothing funny about that.

    Nell

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  7. I didn't know that people tell jokes about that sort of thing. Thankfully I haven't ever heard any either. It's not funny at all.

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  8. I know where you are coming from. I grew up with seeing my dad having many seizures and then watching Noah go thru so many. It's a very touchy subject with me too. Hopefully people will have a heart and not discuss it in a joking way.

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  9. People aren't seriously making jokes about that, are they? I certainly hope not. I was besides myself when I heard about it. It is most definitely not a joke.

    *huge hugs*

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  10. I haven't heard any jokes and can't believe anyone would joke about someone having a seizure!

    I have never witnessed anyone having a seizure, but I think I would be a party pooper on that one too.

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  11. I didn't hear about this, but how terrible. I cannot even imagine people would make jokes about something like this.

    As a teacher, I had a few students seizure in my classroom. I was horribly frightening for me, but I was always amazed at how considerate and compassionate my students were. Even sixth graders know better!
    Jen

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  12. Yeah, they will and it will SUCK to know that people are so blind to what is real pain to others. And we'll love you and it'll be ok to tell those people to BITE IT! And you know what else? Anyone gives you crap about it, we got your back too...that's how we roll.

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  13. I haven't heard joke about this! seizure are a serious thing! thanks for sharing!

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  14. Personally, I agree with you. Another person's misfortune is just not funny.

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  15. Yeah, I hear ya. I have a brother who is schizophrenic, and I often hear people say things like "what a schizo", or some other condescending remark.
    Those people know so little about the terms they are using. So very little.

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  16. I won't be laughing b/c you are absolutely right this is a serious side effect for many illness! Its just not funny anyway you look at it. Great post and I am so glad you have the wide audience to view it! Its a very important POV to extend to others...

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  17. I agree totally. Today during Bible Study Fellowship, one of the girls in my group had a seizure. She has stopped taking her medicine because she can't drive while taking it and she has a son that she has to take care of. Its sad that she has to make a choice!

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  18. I am the same. My brother had a brain tumor when he was a litte guy and had seizures for years (and will still, at 30, have one if he doesn't take his medicine). I have always been sensitive to anything like that. I'm sure the "funnies" will come, but, like you, I don't think they're so funny.

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  19. I'm definitely with you on this one... I don't find jokes about people's physical ailments funny at all... whether it's seizures, being overweight, having bad acne or anything else. It just isn't kind and I know it hurts - even if the person being joked about laughs, they are still hurting on the inside.

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  20. As a teacher, seizures scare the hell out of me. I have several students with seizure disorders, and though nothing has happened this year, I've had students have seizures in the past. It's terrifying, and I CANNOT imagine what it's like to witness them as a parent.
    I haven't heard any jokes about Ted Kennedy, and as an 8th grade teacher, I usually hear all sorts of inappropriate jokes. Let's hope that people let this one go.

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  21. Ive witnessed people having seizures a few times and they are definetly not something to laugh about. I hope that people will choose not to joke about it!

    By the way, Ive been following your blog for some time. When my oldest son Jaden was three and a half I was told that we should be tested for autism. He didnt say any words, would barely interact with anyone, and through fits at the drop of a hat. I really didnt believe he had autism, though. Because right before his first birthday, he did do these things! He said, "Hi." "mama" etc. and would smile at you....anyways to make a long story short. I found a doctor that helped us out and put him on a yeast free diet along with some supplements.. my son is now 4 1/2 and is right along with the other kids his age...I just wanted to share my little story! Thanks! :)

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  22. I hope that no one finds that funny :( And I really hope he is OK, I think he also is still fighting cancer.

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  23. People make jokes about seizures? Wow. I must have been more sheltered than I thought.
    A good chunk of my family has seizures, for a variety of reasons:
    1. Bio mom has epilepsy (peti mal blackouts).
    2. I've had one grand mal at the age of 11 1/2
    3. My aunt has them from nose surgery (fixed a deviated septum, fucked up, hit something, now spinning things screw with her).
    4. My step-mom has grand mal and petit mal from brain lesions and scar tissue from an electrocution at 8 yrs old.

    So yeah, not going to mock or make fun of anyone, and I'll take someone out if they do. I've seen seizures up close and personal. I've experienced one myself (though, thankfully, no memories of it).

    Okay, long comment short: *hugs*

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  24. I haven't heard any of the jokes - and I'm thankful for that. It's insensitive to say the least. It's not a funny matter in the least.

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  25. A hug to you and thanks for your thoughts! I agree ... it frustrates me that some people can be so insensitive, even political figures deserve kindness! Illness or hardship should never be made light of in this manner!

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  26. Well said. I wish everyone would take this attitude when they make "jokes" about any sensitve subject.

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  27. I understand. I haven't heard any jokes, but in my family circle, epilepsy is way too close to our hearts to find ANYthing humorous about it...

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  28. I don't know who would find that funny

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  29. I guess I'm hanging with the right people 'cause I've heard nothing of the sort.

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  30. Ew, that's not even remotely funny. I think he has a brain tumor which is probably growing which is why he had a seizure. Jokes like that aren't cool.

    BTW, I saw a woman have a seizure at a restaurant once and I can't imagine seeing your baby like that.

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  31. I agree with you a million percent! There's nothing worse. It was terrible for me when my son had his seizures, and even worse for my husband. He had nightmares for years, and is still a little more protective of him than he might have been if not for the seizures.

    It's sick what people make jokes about. I once saw an episode of FAmily Guy that made fun of people who had had strokes. It made me so mad!

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  32. You are so right! I can joke about a lot of things, but just seeing Wog have two was too much for me!

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  33. I cannot imagine anyone in this world being that cruel and insensitive... and if this has happened around you, it is more shameful than words can put to it. As a teacher for 30 years, I witnessed too many seizures... but thank God each teacher, student, nurse or by-stander was a beautiful and comforting presence...

    I wish this comfort to each individual, parent or loved one who has gone through this pain...

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  34. Wait, who's making jokes about ANYONE having a seizure? Seriously? I guess I'm glad to be out of THAT loop! I can definately see why you'd be ultra-sensitive to this but I'd think pretty much any right-thinking person would think that such a joke was in poor taste.

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  35. I understand exactly where you're coming from on this one. People who throw around jokes about seizures, or 'retards' (a word at which I cringe just typing), or the shortbus, are clueless as to how hurtful such things can be.

    It's mean. And if you ask me, there's really nothing funny about mean.

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  36. Thanks for that, Stephanie.

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  37. I LOATHE inappropriate jokes. I don't understand how our society has decided it is okay to be cruel.

    You are not a party pooper. Humor is an important part of life - but it should never be cruel and insensitive.

    And HUGS for you and your sweet boy!!!!

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  38. Oh gosh, why would anyone joke or laugh? I certainly hope not!! I am not a fan of the senator, but I would never poke fun at something like that. I hope no one else will either.

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  39. I hope nobody jokes about it. It's not something that people should laugh about. Sending you lots of hug your way.

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  40. I don't see how anyone could ever find that funny.

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  41. I can relate to this post. My son has food allergies (he has outgrown most by the grace of God!).

    I love Will Smith movies, but when I saw "Hitch" and the scene where he has an allergic reaction to shrimp, I about flipped out. I can now watch it a chuckle a bit, but my first reaction was shock! When you as a parent go through something with your child, there is NO, ZERO, ZILCH humor in it. It's very scary and very serious. And to see someone making light of it is infuriating and disappointing!

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  42. i hate to even hear or read "the word". brings back too many memories of a time where i felt the most helpless feeling that i've ever felt in my entire life.

    i don't think it's a laughing matter either...never will.

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