November 13, 2008

Wish And Wear

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In December of 2003 our oldest son Noah (2 yrs old at the time) was diagnosed with a rare seizure disorder called Doose Syndrome. It was probably the hardest time we've ever faced in our lives, but through much prayer and research and faith we were able to see Noah healed. He's been seizure-free over 4 years now.

During this time, Noah was granted a wish by the Make-A-Wish Foundation. His wish was "to go to the zoo and pet a whale".

So, they sent us on a fabulous family vacation to San Diego, California where Noa
h could see his favorite animal - the polar bear - at the San Diego Zoo and pet a whale (or rather it would be a dolphin but anyway!) at Sea World.

Wish trips take about a year to be granted, so we had a lot of time to be excited about the vacation. We also found out we were pregnant with Gray!
I'm wearing him in the mei tai in the photo above. I wore him pretty much the entire trip- everywhere we went.


Make-A-Wish is as amazing as you'd dream it to be. Their mission is to grant wishes to children with life-threatening diseases.

Although Noah wasn't terminally ill, his syndrome w
as definitely life-threatening as is any seizure disorder.




For two and a half years Noah was on the Ketogenic Diet to treat his seizures. We were provided all accommodations to assist us with preparing his meals at
our hotel as well as while we were out and about. We just had to take this picture of Noah by some birds at Sea World that were also on a special diet like him!



We had backstage access at Sea World, and our own private dolphin show- complete with high jumping and splashing tricks! (I'm wearing Gray in the ring sling here.)






This holiday season,
Macy’s is collecting letters from Santa in a special Santa letterbox at all Macy’s stores. For each letter received, Macy’s will donate $1 to the Make-A-Wish Foundation.

I believe in the magic and miracles of Christmas.

And I definitely have seen the power of a wish.

35 comments:

  1. How very special your family is. Make-a-Wish is such a great organization. I am so glad ya'll had an awesome vacation!

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  2. I adore this post. You are amazing - you renew my faith each time I stop by for a visit.

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  3. What a great thing Macy's is doing. We'll defintely have to write our letters and take them there.

    My friend worked for Children's Hospital here in Dallas and was often a liason with Make a wish, so I loved hearing all the sweet stories and neat requests the kids have!

    So glad to hear is doing so much better. Congrats on the 4 years seizure free!

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  4. How fabulous is that. Make-A-Wish is such a great organization for children.

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  5. What an amazing and blessed family. Thank you for sharing the wonderful pictures.

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  6. What a great post! I am so glad your son is seizure free; it is a very scary place to be as a parent when your child has seizure (my niece had them - she is now freed from them) Make-A-Wish is a great organization we donated to a young boy in Arizona who wanted to be a fireman when he grew up (which was unlikely due to his disease) Make a Wish and the locate fire department created his very own fireman bedroom including the front end of a real fire truck. We donated all of our Heros bedding and room decor! It was such a special feeling to help. I will make sure my large extended family participates in the Macy letters to Santa and thanks for bringing to our attention. btw you twitter image of you daughter is so adorable :)

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  7. You have such a sweet family! I love the guys with the sunglasses on too cute.

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  8. How wonderful! I love the Make a Wish foundation. I love that they don't just grant the wishes, they go above and beyond to make it truly matter. One of my closest friends in high school had a rare kidney disease, and they granted her wish to go to NYC and see the Rosie O'Donnell Show, which was so special for her.

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  9. What wonderful memories your family has made, even though those must have been dark times for you! My son had several seizures when he was two. He was on meds for two years, and has been seizure free for almost two more years. I know from experience how terrifying it is to watch you child have a seizure. Congrats on making it to four years, and I hope he remains seizure free forever! :)

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  10. Your family has been through a lot and what a great post. Make-A-Wish is a terrific organization!

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  11. love this post...thanks so much for sharing! i love that he wanted to pet a whale! so sweet.

    thanks for sharing about macy's, too...we'll do that!

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  12. This warms my heart! You are so awesome to constantly promote amazing things MAWF!

    :-)

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  13. steph, you continually give me strength through your posts! You are such a role model for so many mothers! Praise God for healing your baby boy!

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  14. Make-a-wish is such a wonderful organization and I am forever Thankful to them for providing this for Noah. This is such a great thing that Macy's is doing.

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  15. What a wonderful post! I love make a wish as well - we have the privilege where I work of sponsoring a child each year for a trip, and it is such an inspiring and heart warming program!

    Thanks for the heads up about the Macy's program, can't wait to participate!

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  16. Goodness! You gave me goose bumps! I will definitely give when I'm in Macys! Thanks for the heads up!

    BTW, the pics are great! Y'all look fabulous and so happy!

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  17. What an amazing story. I'm so prayerfully glad your son is better now. I am also so thrilled that his wish came true. How amazing!

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  18. How beautiful! We too will help!

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  19. The Make-a-Wish foundation is amazing! Thanks for sharing your story. I've been following another blog with a little boy who just got his wish in August - His story is amazing as well...the first link is to the blog post and the second is to the slide show from his wish.

    http://rhettsjourney.blogspot.com/2008/08/ohmygosh.html

    http://www.onetruemedia.com/otm_site/view_shared?p=6df539e798aa9bb892d670&skin_id=701&utm_source=otm&utm_medium=image

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  20. Wow, I bet those 4 years seem like yesterday and seem like a million miles away...so thankful for answered prayers!!

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  21. Amazing story and so happy to hear that he's been seizure free for 4 years! I saw a commercial for the Macy's Santa Letter charity. I already told The Husband we were going to do that instead of just "mailing" them.

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  22. I volunteered at Give Kids The World while I worked at Disney World and all those kids were just amazing people-I am excited to start writing letters-thanks for the info!

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  23. How wonderful! I hope Macy's gets a flood of Santa letters.

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  24. I love to hear Wish Stories!! I am the Outreach and Volunteer Coordinator for Make-A-Wish in S. Az and I absolutely LOVE my job. I am incredibly passionate about MAWF's mission! There is something truly magical about the power of a wish!!

    You have such a beautiful family!

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  25. Looks like an amazing trip. It's pretty wonderful what Make a Wish can do. Thank you for sharing the Macy's Make A Wish with us! We will definitely help with wishes.

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  26. Love that story. And Noah's is such an inspiring one.

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  27. Thanks for sharing your story. I'm glad Noah's condition turned around and hopefully someday he will be on the other end of the wish for someone else.

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  28. I loved this post too- it definitely squeezed my heart! And I'm so glad your little boy is healed.

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  29. Thank you so much for sharing what Macy's is doing, what an awesome, easy opportunity for all of us! I was already impressed with Make-a-wish and then I followed Noah's story, amazing, absolutely ammazing!

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  30. I am so glad you shared this story and were able to have a great time as a family. What a special wish!

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  31. Thank you for informing us on so much, Steph!
    I've read your story so many times before, but I still get goosebumps each time. God Bless your family. Really.

    On a side note, my dh works a 2nd job driving a limo, and he's had a few jobs where it's been to drive as part of a Make-a-Wish gift. He has been so impressed by the foundation and the job they do to grant these wishes.
    I have to add that every time I read a Make-A-Wish story, I find it to be a big reminder to pray for all children, but especially these.

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  32. Such an awesome trip Steph that Noah got to do. I'm so glad he is healed as well :). I saw that Macy's commercial and so excited about them doing this.

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  33. So wonderful...what an amazing organization...

    Praise to our Great Healer

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