Pointing to Noah, I said, "That doctor told us he would end up in an institution."
Normally I am not so aggressive, but I still nurse sore wounds on occasion from our earlier horrific experience with Noah's illness. I explained to her Noah's story and how he was seizure-free by day 4 of the Ketogenic Diet, the same treatment we had asked the doctor she works for about, but he didn't believe in it.
She looked at me confused and said she had never heard of a diet- let alone the "Ketogenic Diet" even after I explained to her how it worked and what it entails. And to be honest, I am not sure if she wanted to believe me.
I was appalled. How can it be that someone treats children and adults with epilepsy, but has never even heard of the Ketogenic Diet? How many parents out there are not given the option for this successful treatment- this treatment that took our son from having hundreds of seizures a day to ZERO?
Just Google "diet and seizures" or "diet and epilepsy" and it comes right up. I don't expect just anyone to have ever heard of this diet before, but if you specifically treat epilepsy, um, call me crazy, but shouldn't you know about this!?
I obviously didn't know about it when Noah first started having seizures and I sure wish those doctors had at least suggested it or offered it as a treatment option. True- it's not a pill, and it's not easy. Noah was on the diet for over 2 1/2 years, and although it is tough, it's totally do-able. And it was much easier than watching him have seizures all day and night long.
The Ketogenic Diet is not a guaranteed cure, but neither is any epilepsy medication. It's a valid and successful treatment option that should be offered to every parent with an epileptic child.
And I will state the obvious: Unfortunately, if doctors in our area suggested the Keto Diet to their patients, they'd lose them as a patient as they'd have to refer to a bigger hospital in Chicago where there is a trained Ketogenic Diet staff. So, they will lose money. BUT they might possibly save a life. I would hope they'd make the right choice.
I dream that someday there will be more Ketogenic Diet centers available, and not just in big cities.
After Noah was seizure-free, I did send that first doctor a kind note telling him about Noah's success and asked that he please give the Ketogenic Diet more consideration next time. It breaks my heart that his own staff still knows nothing about it.
I'm on a mission to spread this message again- we've done newspaper articles and so forth, but now I'm contacting all the neurologists in my area directly. They should expect to be receiving a nice card from me soon- telling the good news of Noah's story and requesting that they at least consider the diet for their patients, and train their staff to know more about it. Now, they will never be able to say they didn't know.
Below is a video of my miracle, Noah- progressing wonderfully in the 1st grade, improving amazingly with his reading, and next week he will be 3 years seizure-free.
You can read more about Noah's story here.
This video has my heart bursting with pride.
Life of the Day, Day 08