May 20, 2006

The full story

3/24/10

After about 6 years I've decided to revise this story. I will include the original below, but my heart has struggled recently with who I was when I wrote it (it is still very much our story) and who I am now.

On Thanksgiving Day 2003, Noah was 2 1/2 years old and had a grand-mal seizure right in front of me in our basement. I thought he was electrocuted, but there were no outlets nearby. Soon we'd find out that it was a seizure. He slept on me afterward, in my arms in the ambulance. And finally woke up some time later at the hospital.

We were told it was probably an isolated incident,
his tests and scans all came back normal. Many children have a seizure at some time or another, it probably wouldn't happen again.

Well, it did. He had one about a week or so later and we again rushed by ambulance to the hospital. This time his tests were not normal. He was put on medication (Topamax) and we were assigned a neurologist. Things become a blur when I think about this time because all of a sudden he went from 1 seizure a week to about two hundred or more a day. All sorts of seizures from staring spells to drop attacks to grand mals, any kind and every kind.

He had to wear a helmet at all times, he lost his speech, and soon his ability to walk and do many activities. It was like we were watching him waste away right before our very eyes.

Our pediatrician and neurologist at the time didn't know what was going on and (from what it looked like to us) they showed no sign of trying to find out what was wrong with him. Their only plan was to try more meds. And that only made Noah worse.

We went out on our own and miraculously got a last-minute appointment with a pediatric epileptologist at Children's Memorial of Chicago's Epilepsy Center. She immediately was able to diagnose Noah (finally) (and when I say immediately, it was like 10 minutes). He was diagnosed with Myoclonic-Astatic Epilepsy, also known as Doose Syndrome.

We were offered a couple options- try another medication or try the Ketogenic Diet. We'd heard of the diet- we had previously asked our original doctors about it and they said "nobody does that anymore. It's too hard. It doesn't work."

But they couldn't even diagnose Noah.

We fired those doctors.

This (wonderful, amazing, answer to prayer) doctor at Children's had experience in this condition and knew first-hand that the Ketogenic Diet had a nice success rate with Doose kids. We were on board. We did start a new drug (Keppra) with minimal side effects, and chiropractic treatments with moderate success in the meantime until we could start the diet.

Noah started the diet a few weeks later in March 2004 (initiated at Children's Memorial. I stayed with him the entire time.) By the 4th day of the diet, he was seizure-free and we were sent home.

He came off Keppra within a couple months and continued on the diet for 8 months seizure-free, and in October 2004 he had a grand mal seizure that we believe was from an ear infection. He never had another seizure. As of this writing, it's now been 5 1/2 years. :)

Noah was on the Keto Diet for 2 1/2 years and weaned from it completely in the fall of 2006. He's remained Diet-free, Med-free, and Seizure-free all that time. It's pretty awesome.

I wrote a bit about the diet in the past here. The Ketogenic Diet is in no way easy. Nope, not at all. But it is SO WORTH IT.

related: we strongly believe the vaccines Noah was given as a baby play a large role in Noah having the disease of Doose Syndrome. Through discussions with other parents with Doose kids and other vaccine-damaged children, and many years of research, we are convinced vaccines do more damage than good, especially to children at risk. And thus, the question... how do you know your child is at risk?

We immediately stopped vaccinating our children and will never again. I urge you to know all the facts, laws, and your rights regarding vaccinations before you decide to vaccinate your child. And yes- it is your decision. Not anyone else's. Including me. :) So please do not let my story dictate whatever you may decide. Read, research, ask questions, attend classes & webinars, talk to your doctor openly, stay up to date with the latest news and vaccine recalls, and be armed with all the information you can to back up your choice.

also: be willing to treat yourself or your child with a diet change in addition to/or instead of pharmaceuticals. It is more time-consuming and exhausting, but SO WHAT? -it could be your cure.


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original version, written some time in 2004
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On Thanksgiving Day 2003, we were shaken from our everyday normal life. Noah, our normal, healthy 2-year-old son was suddenly having seizures that no one could explain. From the very beginning we felt it was an attack from the enemy. We searched our hearts and our home to see if there was any area of sin in our lives that could have given room for the enemy to get inside. At first we might have looked crazy as we were throwing out things from the house that we thought might or might not be “it”, but we didn’t care. These things were material things and they didn’t matter to us as long as we felt we were acting out of obedience to God. As we searched our hearts and submitted ourselves wholly to Him, we saw more doors open to our answer each step of the way.

We knew that Noah’s diagnosis of epilepsy was not in God’s plan. In the natural, we were literally watching our beautiful little boy disappear from life. By January 2004 Noah was having more than 200 seizures a day. These attacks were vicious and required him to wear a helmet for protection against being thrown to the floor almost constantly. At some times he could not talk or walk on his own. He was in a daze and often-times unresponsive. Our hearts had never been so close to being completely broken, but we knew there is Hope.

I would sing these words over and over to Noah: “I sing because I’m happy. I sing because I am free! His eye is on the sparrow, and I know He watches me.”

We took huge steps of faith not to succumb to the desperation that wanted to take over. Psalm 138:8 says The Lord will perfect that which concerns me (to us we claimed our Noah); Your mercy, O Lord, endures forever; Do not forsake the works of Your hands. Joshua 1:5: No man shall be able to stand before you all the days of your life. As I was with Moses, so I will be with you. I will not leave you nor forsake you. And Philippians 1:6- being confident of this very thing, that He who has begun a good work in Noah will complete it until the day of Jesus Christ.

I had a dream one night and in it The Lord spoke and said- “I know how this ends.” As hard as it was to watch Noah this way, we were rejoicing because we knew that the Lord has an ending to this better than we could imagine. Not only did we fight opposition with Noah’s seizures, but also our own doctors could not provide help for us either. Medication with horrible side effects was being increased all the time, and a cure was never discussed.

We were to just “accept” Noah for how he was and learn to live with it. Many parents with children suffering with the same disease are told their children will most likely end up in an institution. We devoted every moment possible to prayer, scriptures, and researching in books and the Internet. We knew that the medication was doing more harm to Noah than any good. We could not bear to see our child wear that helmet one more day. Our family continued to pray for the answer to be revealed to us. We knew that the enemy was arrested and “found out”- our answer was about to be released.

Through research, we learned about the Ketogenic Diet- a successful alternative cure to seizures. This diet was nothing new- it has been around since biblical times. Matthew 17:15-21 tells of a man that brings his son to Jesus: “Lord, have mercy on my son," he said. "He has seizures and is suffering greatly. He often falls into the fire or into the water. I brought him to your disciples, but they could not heal him.” Jesus later tells his disciples “this kind” (meaning seizures) “does not go out except by prayer and fasting.” In biblical times, a person would fast 20 days and their seizures would be cured. The Ketogenic Diet simulates fasting. It is a temporary diet and it requires the body to burn fat instead of glucose for energy. When the fat is burned, ketones are produced in the brain- and the ketones control the seizures. This is a natural method designed by God.

Our own Pastor told us at the very beginning that it could be something as simple as being diet related. We never forgot that.

Our doctors never told us of this diet as a treatment option. We asked them about it and they immediately showed resistance and had no faith that it would work. Their answer was to try another medication. We felt this was an opposition from the enemy. After a lot of prayer, we decided to wean Noah from his medication on our own and found a doctor at Children’s Memorial Hospital in Chicago that supported the diet and had faith that Noah would be well again. This doctor had a normal waiting list of up to 3 months. We saw the Lord’s divine intervention: the doctor saw Noah on her day off just a few days after we called in for the appointment. Noah was scheduled to start the diet almost immediately.

We believe the Lord led us to learn about the diet, and he opened up the doors for Noah to see the proper physician that could help us along the way. There is no other explanation. The Ketogenic Diet is normally used as a “last resort” treatment option. To start the diet the patient usually has to fail several medications (often 10!) first, which then means sometimes years before the diet is considered. We have since met several families of children with the same diagnosis as Noah. Many went through years of 10 unsuccessful medications, surgeries, and procedures before considering the diet. Noah only went through 3 months of seizures before starting the diet. Although 3 months seemed like forever to us, Praise God we didn’t have to wait 1 or 2 years!

Noah’s Ketogenic Diet initiation took place at Children’s Memorial Hospital in Chicago. Normally the diet requires at least a 5-day admission. He was under constant medical supervision and we were warned of possible dehydration and severe vomiting and sickness during the process. Noah never had any of these problems.

He went from having so many seizures that we’d lose count to having only one seizure per day in the hospital. He was so successful with the diet that we were able to go home early on only the 4th day! Noah was seizure-free by the time we left the hospital. The Ketogenic Diet is only temporary- many children remain on the diet for at least 2 seizure-free years.

Upon starting the diet, Noah’s development was instantly back to normal- back to how he was before he started having seizures. Actually, he is BETTER than before!! Smarter than we had ever seen him- talking so much and so clearly- it is amazing! Many children with seizures like him end up requiring occupational and speech therapy, among other therapies to help them regain what they had lost through the epilepsy. Noah shows no signs at all of needing any therapy.

A verse held close to our hearts through all of this, in the Message Bible, is Proverbs 10:25- “When the storm is over there’s nothing left of the wicked; good people, firm on their rock foundation aren’t even fazed.”

Even in the hardest times, there was NO way we were giving in to this situation and giving the devil credit for this. As hard as he was trying to make it for us, we were going to make it harder for him! Our lives have changed, but only for the better. God truly has turned what the enemy meant for evil into good. We stepped out more in faith than ever before and we continue to see miracles happen everyday. We are wiser, better listeners to the Holy Spirit, and are now much faster to respond obediently. Not to mention that Noah is overall healthier and smarter than he was before! We have an awesome testimony to tell- we “beat the odds” the doctors gave us, and God has already started to use us to encourage others in similar situations.

The Lord has shown us personally that even though the storm has seemed to pass, we still need to keep standing on our firm foundation and increase our prayer and devotion time even more than before. Now is not the time to just sit back and relax even though the “tough times” have passed. We are stronger now, and must keep up the strength training! We should not wait for the desperate times to come and then decide to start listening and obeying. We also can’t just expect it all to be handed to us- it just won’t work best that way. There is a reason the Lord gave us a book of instructions!


We have not only seen Noah’s healing, but also big and little things have come to pass that we have believed for as we have been more obedient to Him. The blessings keep pouring in. We have been a big support to other families going through our same situation and have helped them get proper medical attention and also started on the Ketogenic Diet. These are also people that have become great friends, even though some of them we have still never met.

Noah has had one EEG since starting the diet. An EEG records the seizure activity in the brain and is what was used to diagnose Noah’s seizures in the beginning. The doctor told us that the results were not only good, but normal. Normal- meaning like a person that doesn’t have epilepsy!!


Noah did have one seizure in October 2004 from an ear infection. We do have to be extra careful to avoid exposure to other illnesses so that Noah’s body can be strong and continue to fight the seizures. Since the infection, we have seen no other seizures and no signs that any more will return, for over 1 ½ years now. His doctors believe that 1 seizure was an isolated incident and will not tarnish his success with seizure-freedom. Noah will continue the Ketogenic Diet through October, when he will be 2 years seizure-free. We are believing we can start weaning the diet around November 2006.

*Updated to add: Noah was able to come off the diet just before starting Kindergarten in August 2006! He continues to be healthy and seizure-free!!!

We never once doubted that God could heal Noah instantly and miraculously. We do know from His word that healing can be a process, and we followed His Word to see Noah’s healing manifested. God is good. He is our Teacher, our Healer, and our Refuge. In Him, we are safe and always have the victory!

*Updated December 2009- you can hear a podcast of my interview about Noah's Story at Pink Floats. Listen to Don't Give Up PT2.


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68 comments:

  1. That is a remarkable story--thank you for sharing it!

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  2. I can remember having your family over and witnessing Noah dropping. I can't believe it was so long ago! God has been with you throughout this ordeal and will continue to give you guidance and direction...

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  3. Amazing testimony! God is so good!

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  4. A friend of mine sent this link to me and boy was it ever a blessing! I was recently diagnosed with Epilepsy and have been fighting a huge battle with medications, loss of freedom, attacks from Satan, etc.. You will never know what an encouragement this was to me! Thank you so much for sharing!! I will certainly be talking with my doctor about this diet.

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  5. This is such a great testimony of your faith and God's love and protection. It is awesome that you didn't just do what the doctors said, which it can be so easy to think they have all the answers sometimes.

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  6. Thank you for leaving a comment on my blog. I am curious how you ran across it, what linked you there. I am pretty new to this and find that interesting.

    What a wonderful story of your son Noah. I see you being able to use what God has done in your life to minister to others.

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  7. What you have been through. Wow. I have never heard of this or the diet. I am so thankful that your son is better. You are so right about how we are not to let our guard down, but to stay ready and prepared. Thank you.

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  8. Wow, what an amazing story. I can't imagine going through what you've been through.

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  9. Stephanie! What a wonderful story. There's so many things I want to comment about, but it all boils down to one thing: God is so good! We have a similar story about clinging to God's Word for the life of our baby. Thank you for sharing your story and giving God all the glory. I really enjoyed reading about your faith and your family! Thanks!

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  10. My son had one seizure and that was enough to scare me for the rest of my life. I can't even begin to imagine what you went through, and how grateful you must be to be safely at the other side now.

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  11. What an awesome testimony of God's healing and faithfulness! Thanks for sharing this about your journey.

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  12. stephanie, i just want to hug you. i can only imagine how this affected you. my hailey had four seizures last year at 6 months old, it will be the one year anniversary tomorrow, actually. however, hers was mostly likely related to her severe diarrhea. anyway, i thought i would lose my mind. i thought i had done something to deserve what was happening to her. i was afraid that i was being punished.
    like i said, i can only imagine what you went through with noah. my heart goes out to you and i'm so happy to hear that he's doing well. it is truly a blessing.

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  13. Thanks for sharing such a personal story that is such a testimony of God's goodness. I am happy that he has blessed you and your family with a new healthy son!
    Melissa

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  14. Wow, what an amazing story. I got tears in my eyes. Thanks for sharing your testimony of God's faithfulness. So cool. So cool.

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  15. What an amazing story! Thanks for sharing it! I'm sure God is using it for His glory in more ways than you know. Being faithful to God and His word sure pay off! :)

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  16. What a miracle!! Praise God!!!! I cannot imagine the journey you were on, or that others are currently facing. I cannot imagine watching my child suffer. Thank God he gave you the answer so quickly.

    I do not have a story that would be equivalent but I know God provided a health secret to us as well. My daughter was fighting ear infections and it came to the point where she took 3 sets of anti-biotics and on starting the 3rd dose she sounded as bad as day one. (She had a super stuffy nose and double ear infections.) She was also prone to any and every virus that came along. If she caught it, she had it for 10 full days. Other kids would recover in a few days and she was in awful shape for the entire 10 days.

    I prayed for God to give me wisdom. In addition, my son was weeks old and was having colic fits. I was past fatigue. Anyway, I found info on probiotics and was scared to try them. God brought me two confirmations, one being a medical doctor and we started both kids on the probiotic immediately! Since then, my kids have been well (within 3 days their symptoms were gone). No viruses, no infections, completely WELL! We use a specific one that is superb. Other friends of mine have tried cheaper versions and still find they fight infections and viruses. The one we use is LifeStart by natren. WWWdotNatrendotcom Anyway, if your son needs his immune system to be supported you may want to check them out. Their website is super informative and if you have questions concerning a specific medical issue they are very helpful in helping you choose a way to boost their immune system as pertains to their medical issue. Anyway, you have much to be thankful for! Thank you for sharing!

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  17. Wow.. I have to say Praise God that you guys were able to stay strong and find that diet... That is an incredible story and I pray that Noah stays seizure free and leads a normal life. You are wonderful parents for pushing to find a better way for your son!

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  18. I am moved to tears and am praising the Lord for His care and mercy over litte Noah. Thank you so much for sharing and giving testimony to the Lord's power, care, love, strength and protection over your family.

    I am a mother of two little girls and long to have a little boy one day. Noah is the name we picked out for our little boy. As I often think about this name, please know that I will remember your little Noah in my prayers.

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  19. I am humbled by your faith and testimony. Your desire to submit yourselves wholly to Him is something I strive to do each and everyday. And I will say that some days are much harder than others.

    While Parker doesn't deal with seizures, he does deal with so many other health issues. And I can relate to so much of your story.

    Thank you for sharing it.

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  20. WOW! Somebody sent me the link to this story! PRAISE THE LORD!!!! AMAZING! Thanks for sharing!!!

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  21. Thank you for writing about this! I don't believe it was an accident that I found your story. My older brother (26 years old) has had unexplainable seizures all his life. They have tried medication after medication and have even implanted a pacemaker-type device in his chest that has to be activated with a magnet when he is having a seizure. I am sending my mom a link to your story. I'm curious as to whether she's ever heard of this diet in the 26 years she has dealt with doctors concerning my brother's condition!

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  22. Wow, what a remarkable story! Thank you for sharing it with us!

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  23. I am new to your blog via Elizabeth from "Pointless blabberings". Thank you so much for sharing this...so amazing!

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  24. awesome!

    to God be the Glory great things He has [and is] doing!

    i was wondering if, after all, God threw this at you because of something wrong you did...

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  25. I am not sure I understand your comment. If you are asking if I think that God did this to Noah because of something I did, I do not believe that at all. Just originally when we were searching for answers and wanting to get Noah healed, we were willing to do anything and everything to be sure we were in obedience to the Lord. Sin is sin and there are horrible things in this world like disease, death, and pain, but they are not of God or punishment by Him. His love is unconditional.

    Steph

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  26. God is so awesome, isn't he? My daughter has seizures too, though she hasn't been diagnosed with epilepsy yet (the doctor says they are from her other condition, if they are seizures, they are seizures and what difference does it make?)
    I had never heard of this diet. Off to wikipedia I go.

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  27. I am truly amazed by your story. Reading it brought tears to my eyes, just hearing all that you & your family have been through, and then all that you have accomplished through prayer & faith. God bless you all! :]

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  28. what an amazing story! God is so good. thank you for sharing.

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  29. What a remarkable story. I credit your persistence, faithfulness and open heart for this wonderful outcome. Thanks for sharing this journey!

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  30. What an amazing testimony to what God can and will do when his children are faithful and obedient! Thank you for sharing this story, Noah's journey. It touched me and I am sure it will touch anybody who comes to read it.

    Btw, I had to laugh when you got to the crazy looking part. I could picture you doing that and it made me chuckle.

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  31. I am really humbled that you shared your story - what perseverance and faith. Truly inspiring.

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  32. Wow, 200 seizures a day to zero? What a WONderful miracle!

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  33. The power of prayer and inspiration has no bounds.

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  34. Our niece was just diagnosed with epilepsy, I know that her mom and dad were considering this diet too. Thank you for this wonderful information. :)

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  35. Amazing story--I followed your link from owlhaven. My daughter was diagnosed in Feb with epilepsy. We started one medication and she had an allergic reaction so we decided not to continue with any meds. The neuro doesn't offer any alternative options. She just started depakote a few weeks ago (per neuro's 6 month check up and determination that her seizures may go away as a teen if we stop them with meds now). I'd be interested in hearing what sort of seizures yoru son has and how he is doing now, 2 years afterwards.

    Thank you for sharing your story--it's an encouragement!
    apryl

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  36. Praise praise the Lord of Hosts! Let all of Heaven's Angels Sing! I'm blessed and provoked to thinking that your first response was ridding of sin! Total repentence. We have experienced that kind of oppression-natural maladies being hightened to curse-like consequences because of sin. Thank you for that perspective of repentence.
    Everett was just over 13 months this year when he had his first "unexplained seizure." The neuro doc's responded the same way to us as they did you and we resisted their prodding to start med's. We saw a homeopath dr. but what we truly found is that his body has a lower threshold for illness than most children and think it is a similar response to my husband who has migraines with poor health and diet. Anyway, thank you for sharing your story! I hope more parents come to find out about Ketogenics and also through your testamony about repentence!

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  37. I am so touched with your story.

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  38. I'm not stalking you..really. I had been clicking through other things on your blog and hadn't seen this--

    Wow, wow and wow. We have eight children, one of whom was diagnosed as hearing impaired when she was 2 1/2 and then one of our twins was diagnosed with neonatal stroke in May. We too have sought the Lord, prayed, stood firm, looked for his guidance. We have seen miraculous things happen. We have had to swim against the medical flow. We have seen the Lord use one of my internet search typos to take us to exactly the right people to help us. We too have been so blessed to meet people through this process that we never would have known otherwise. And we have been taught so much about spiritual deafness, the power of language, the way the Lord can push us and stretch us and love us.

    I knew your blog kept drawing me with such a sweet spirit--and now I know it's the Spirit! So thrilled that Noah is doing well.

    Don't know if this is the right place to share this--forgive my blogging faux pas if not--just a few links to our girls' stories if someone happens by this comment and needs info or encouragement:
    http://www.scrapblog.com/viewer/viewer.aspx?sbId=168270
    http://www.octamom.com/2008/07/sunday-selah_27.html
    http://tinyurl.com/5fs4rb
    http://www.octamom.com/2008/07/rewiring-wires.html

    I keep reflecting that the name Noah means 'peaceful' and 'rest'--which seems the very antithesis of an epilepsy storm--you were so wise to recognize that the enemy was trying to steal his very birthright of name. How powerful to see Noah's peace be restored.
    Blessings~

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  39. SO glad Noah is okay. Good luck and prayers for a great last month of pregnancy! I was in your shoes last year at this time ... I am sure you're ready to be done and have that baby in your arms instead of your belly.

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  40. Its so encouraging to see other moms "standing in the gap" for their kids... my oldest son wasnt talking at the age of three and had alot of autistic symptoms, his speech therapist at the time recommended we have him tested. It just didnt set right with me. I KNEW my child did not have autism. I spent hours and hours researching and I found out about chelation and the GFCF diet...I promise not three weeks after he started this he was talking SO clearly!! I feel that my son is a miracle!!! God is SO good.
    Blessings!

    Angie

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  41. Your faith in everyday miracles restores and refreshes me. God is merciful and kind, all good things flow from him and some of those good things are mighty miracles.

    I loved it when you talked about how God knows the beginning from the end. That is a comfort we can take when we or those we love are suffering. Even in our darkest despair, God can see the ending and His perfect love will never fail us.

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  42. I don't know how I found this post, but I'm so thankful that I did. What a wonderful testimony of God's faithfulness to you as you went through your journey. Thank you for sharing so that others can learn through you.

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  43. I just found this post through Scribbit's blog and what an amazing story of God's faithfulness and love for our little ones! Thank you for sharing. :)

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  44. I just found your blog (through designher momma) and am touched by your story. So glad you kept persuing alternatives for your son. It can be so difficult to go against medical advice and find the right doctor willing to listen and work with you. So glad you have found healing for your son! Praise God!

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  45. This is such an amazing story of God's infinite wisdom, grace, and love for us. My son has been diagnosed with epilepsy and we're looking to treat it nutritionally. I'm still trying to find a supportive doctor, but I know God is faithful. Thanks for sharing such an inspirational story.

    ~Sarah

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  46. Clicking through you links I found this and it brought me to tears. I hope that I should never have to face a challenge as this. God bless and what a amazing little boy you have.
    ps. We are neighbors I too live in Chicago

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  47. What a powerful story and a beautiful testimony, thank you for sharing!

    Kristy

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  48. I just found your blog from "I Should be Folding Laundry". This is absolutely amazing, I've never heard of this diet for seizures. I'm so impressed that you listened to the Spirit & searched until you found what was right for your son. There are not enough parents that do that anymore! Keep up your faith & stay close to the Lord! You have been truly blessed. Thanks so much for sharing this information!
    God Bless You!

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  49. What an amazing story! My sister was born with CP and has seizures as a result of it. Anyway, as a mother of two little ones, it breaks my heart to think of experiencing what you and other parents have had to experience. Faith is a wonderful gift. It just has to be accepted, right?

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  50. I was looking for those slings you were telling me about, and decided to check out this link.Your faith in the Lord and absolute dependence on him is amazing. Praise the Lord for your little boy and his amazing success. I hope he continues to do well.You have inspired me in my own relationship with the Lord. Thanks for sharing.

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  51. Steph - thank you for your encouraging story. My Noah is 4 and was just diagnosed with MAE (1st seizure was in may). He is also having 100 plus seizures a day and we are seriously considering the keto diet. Your story encourages me even more in this direction! And thank you for the verses too...I'm sitting in a hospital room as I type and I found great comfort in them. Blessings to you and your Noah!

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  52. I LOVE your blog (just found it) and have been sitting here reading for quite awhile...totally love your writing style, and even more...your awesome testimony and strength. God is so awesome!! Bless you for sharing!!

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  53. I have a number of children with birth defects (and one has epilepsy). You are right. God did not cause them. Why did not God act instantly to cure them? I think the answer is that often the journey is more important than the destination, something that I have seen many times. The good that God has done through my children is remarkable. An instant cure would have been mundane (other than for the fact that it occurred). An instant cure would have helped one person. Through my children, God has helped many children. And that seems to be the case with your Noah, too. I would say that you are indeed blessed.

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  54. That is an amazing story of God's healing power. How inspiring!

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  55. thank you for sharing your story! my son (now 16 1/2 months) had 2 unexplained seizures in july. it was the scariest thing i have ever experienced. luckily he has not had any seizures since then (he just had an EEG and we are waiting for the results) but your story gives me hope that if he does continue to experience seizures, there is another way other than just medication. i pray he won't experience anymore seizures but you will definitely be someone i look to if we begin to experience this again! you can read his story on my blog here: http://tklarsen.blogspot.com/2009/07/my-worst-nightmare.html

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  56. This is so beautiful. What a testimony to faith and God's healing. I have been reading your blog for a while now, but only just decided to click this link. So glad I did. Thanks!

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  57. Wow! What an incredible story. I KNOW diet has so much to do with our health. This is such awesome proof.

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  58. what a testimony of faith and an encouragement that the Lord is in control! your post gave me chills as a i read it. God is so awesome.

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  59. Steph,

    You must be an amazong mom!! I give you much credit for doing the research and questioning doctors who resisted the more natural treatment. What a touching story and so glad it has a happy ending. I hope other moms learn from you persistance. you havea great blog and lots of great info. I look forward to reading more in the future.

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  60. WOW.

    WOW.

    This story is truly amazing. Your faith is inspiring. I applaud you for seeking the Bible for his treatment. So many Christians STILL do not believe the Bible to be sufficient for EVERYTHING in our lives - including health issues.

    Bless you and your family. I'm coming back to read your blog from now on! I am truly moved!!

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  61. WOW. God is so GOOD! It pains me to think of all the people suffering when this diet could be the answer and the medical professionals only use it as a last resort. Your son is truly blessed to have you for parents. Thank you for sharing your world with all of us.

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  62. This is truly an amazing story. Noah is very lucky to have you both as his parents - it seems fitting that you all were brought together. Thanks so much for sharing your story and I look forward to following your blog.

    Holly (BlogFrog)

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  63. YEAH!! I am thrilled when I hear parents try diet treatments with meds or because of med failure. We had med failure to control my daughter's seizures. We were encouraged to try a GFCF diet. When she came off the dairy portion her seizures slowed and went away! She only seizes now when she gets some milk or has a infection. God bless you for your strength and wonderful parenting!
    God bless and Merry Christmas!
    Heather Laurie
    www.specialneedshomeschooling.com

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  64. I just re-read Noah's story tonight (for the 15th time, maybe?!) because I was telling Lea (Jesse's mom" a little bit about him, and how the conversation I had with you was the biggest reassurance that I could handle doing keto and that it was worth doing. This is the first time I've read the re-written version. It's funny how we change so much over time, isn't it? When I go back and read some of my earliest blog posts, it sometimes doesn't even sound like me.

    Sending you hugs!

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  65. I read the whole thing- thank you for sharing. How amazing when we cry out to God and He reveals Himself- so glad your son is doing great :)

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  66. A friend just told me about your site and I look forward to reading your other articles! Our son was diagnosed with MAE in April of 2008 and our story is very similar to yours only we didn't find control with KETO, we found it with a keppra and ethosuximide combo. It's hard to read though - even though we haven't had those intense seizures since 2009, reading this brings it back so fresh I'm holding back the tears right now! He is still battling absence seizures, but I will take that over the way we used to live any day. Thanks for sharing your story. I've written ours many times but haven't published it on my blog yet. It's hard to condense but you did a great job! There is always comfort in reading a simliar story! God bless your sweet family :)

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  67. Wow, your story is almost identical to mine. My son also started having seizures at about 2 1/2 years old, same pattern on different types of seizures. Non-stop. He lost his ability to walk, talk, go to the bathroom on his own, just about everything. We tried 6 different meds in desperation before I heard the words Ketogenic diet {and it wasn't even from our doctors}. We never went all the way onto the Ketogenic diet because we started the Modified Atkins for Seizures diet while waiting on the waiting list for our hospital stay and while we were waiting his seizures went away. With in one year he was finally weaned of all his medicine, and he has been seizure free and meds free for over two years now. We recently took him off of the MAS diet, but we switched him to the GAPS diet {from the book Gut and Psychology Syndrome by Dr. Natasha Campbell-McBride, great read!} because he has shown signs of not being able to tolerate certain foods still. Anyways your story was touching to read, I really felt for you as I've been there. I am always so happy to read other peoples success stories!!! :) If you want to check out his story go to seizurefreeme.blogspot.com

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  68. My son's (non-epileptic) seizures are also managed by diet (but for him it's not about ketosis, it's about avoiding artificial foods.) I do believe that what we eat is so much more important than people think. We haven't found any doctors that support our choice to treat him with diet, but my son's condition cannot be medicated anyway. So it's not even that we're turning down medicine that they offer us. They just don't support a diet free of artificial foods. How's that for first do no harm?

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