We recently returned from an amazing trip to San Diego, CA courtesy of the Make A Wish Foundation of Indiana. Our son Noah has a rare form of epilepsy- Doose Syndrome or Myoclonic-Astatic Epilepsy (MAE.) He was granted his wish "to go to the zoo to see polar bears, whales, & dolphins" and they sent us to the San Diego Zoo, Sea World, and the Wild Animal Park. It was so wonderful! We were given the royal treatment and stayed in a great 2-suite w/kitchen hotel room, mini-van for the rental car, spending money, etc.! On our free day we drove up the coast to Disneyland! For the kids, it just doesn't get any better than that!
One thing I can say, whether you have a well child or not, take a moment to really watch your children and see how they react to the small things, know how they play and why they do the things they do, take a long look at them now because they DO grow up so very fast, and your relationship with them affects so many aspects of their life and who they become.
It was so rewarding to see Noah so happy and just "being a kid" to the best of his ability. He is doing awesome on the Ketogenic Diet- seizure-free now for over 1 year. His diet restricts him to enjoy life as much as most people, but that's probably because we place too much importance on food PERIOD! We are looking forward to the day where he is not on the diet anymore and remains seizure-free... it will be here sooner than we know!
For more information on Doose Syndrome and Noah's story, please visit www.doosesyndrome.com . For more info on the Make A Wish Foundation, please click on the "Making a wish" title of this blog.